Ehlers danlos syndrome complications?

Question

On april 3rd, I was diagnosed as having ehlers danlos syndrome, classical type. I was having symptoms ranging from gastrointestinal complaints, urinary complaints, muscle aches, fatigue, etc... Anyway, my question is, can ehlers danlos affect your urinary tract? Because, I get symptoms similar to a uti off and on. Like burning/stinging whenever I urinate, and an increased frequency/urgency. Like I said, this happens off and on/intermittent. I had a urine sample done, but they couldn't find anything. I also have fatty stools, constipation, diarrhea, mucus, intermittent abdominal cramps, clothes are slightly looser (but the scale says I weigh the same), smallish potbelly (have had one since I was little), rotten egg burps, vomiting eipsode and dizzy spells (have had these since I was little too), low blood pressure, intermittent joint and body aches, intermittent fatigue, etc...My celiac levels were slightly elevated as was my WBC count. I have an appt with a G.I. doc on 4/24.

Additional Details

I also get horrible acid reflux constantly, and when I do, I also get this nasty gurgling sound in my throat. It's so weird!
He wanted me to have an endoscopy and a colonoscopy, but I'm paranoid about the tools being unsterilized. Anyway, my regular doctor (who is also a geneticist), who also diagnosed me, also wants me to have an x-ray done of my cervical, lumbar, and thoracic spine and a gastric emptying scan because she suspects degenerative disc disease and gastroparesis. My G.I. doctor doesn't really suspect celiac since the levels weren't extremely high or anything, but he wants to have an endoscopy done done just to make sure.

Question: Can EDS cause all these symptoms? Or do you think there's something else going on too, like celiac or DDD? Should I get an endoscopy done? Has anyone on here ever caught anything from unsterilized endoscopic tools? Sorry for all the questions. Thanks for the help!

I heard somewhere that a high white blood cell count can also come frome tissue damage. Well, EDS involves tissue, so, I don't know. It wasn't very high though. Something like 10.9

Thanks again!

Answer 1

Best Answer - Chosen by Asker

At least 9 different types of EDS have been identified; symptoms vary depending on which type of EDS a person has. The most common forms of Ehlers-Danlos syndrome (EDS Type I and II) are characterized by one or more of the following features:

* skin problems
* soft velvet-like skin
* fragile skin that bruises or tears easily
* stretchy rubber band-like skin
* easy or severe bruising
* poor and slow wound healing (usually taking weeks to months to heal)
* small harmless bumps under the skin
* joint problems
* loose unstable joints causing frequent dislocations usually occurring in the shoulders, knees, hips, collar bone or jaw
* double jointedness (hyper extensible joints), extreme in some cases
* joint pain from frequent dislocation
* eye problems
* nearsightedness, occasionally extreme

Less common symptoms that may occur in the more rare forms of EDS include:

* gum disease (EDS) VIII)
* curvature of the spine (EDS VI)
* problems with blood clotting (EDS X)
* more serious eye conditions (EDS VI)
* pulmonary (lung) problems (EDS IV)
* weak blood vessels, intestines or uterus that may lead to more serious complications (EDS IV)

If you have constant reflux you SHOULD get an endoscopy done. You could have some damage to your esophagus, or to your lower esophageal sphincter.

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Thank you once again =)